Young@Park Victoria

Welcome to the Message Board

This is designed for you to ask questions, place comments, answer others.

Please note that The Message Board is for EVERYBODY to have their say, and in no circumstances is to be taken as reliable medical opinions.

So feel free to write what is on your mind here... and comment on other people's posts.

 

IMPORTANT: BY POSTING ON THIS MESSAGE BOARD YOU AGREE TO OUR TERMS AND CONDITIONS FOUND HERE

Welcome Guest 

Show/Hide Header

Welcome Guest, posting in this forum requires registration.
Pages: [1]
Author Topic: Recently diagnosed at 32
SassySasha
Newbie
Posts: 2
Post Recently diagnosed at 32
on: August 30, 2011, 19:36

Hi All,
I live in NSW and just found out about this site. I have been recently diagnosed with YOPD and see my neurologist in Sydney September 15 to work out what direction we need to take. I think I did my 'final' bloods yesterday in the search for a secondary cause - $350 later :? My neurologist is very thorough trying to rule out any secondary cause so for the last month I have been a performing monkey, completing an abundance of tests. We are worried about my MRI because when I was at hospital they ordered more with dye after examining the one last year and the one I just had done. I hope nothing else is found :(

Anyway it has been difficult to comprehend and I was in complete denial. I thought my body was just mucking up for doctors or I was just tricking them. Very child-like my psychologist kindly pointed out so I have accepted that this is what it is and it does not change the essence of who I am. My youngest child is only 2 so it feels crazy. It all started 3 years ago with a chronic sleep disorder. Does anyone else have REM sleep disorder and deep sleep parasomnia? My neuro says this would have been the first sign something was wrong. Anyway I hope to talk soon. Sasha

I am hoping I can share here and hear other stories.

Jennie
Newbie
Posts: 1
Post Re: Recently diagnosed at 32
on: September 2, 2011, 21:22

Hi Sharon,
I don't think I have a sleep disorder, but I have been having the most vivid dreams over the past couple of months (I was diagnosed last month). They have been extraordinary, and I can remember them long after they have happened.
Best of luck with your second MRI result,
Kind regards,
Jennie
SassySasha
Newbie
Posts: 2
Post Re: Recently diagnosed at 32
on: September 7, 2011, 20:36

Thanks Jennie. My dreams are vivid but I act out 'crazily' at night. I have been medicated for a year and a half for my sleep now and it has made a difference. Thankyou for the best wishes. All we can do is hope for the best : )

Pages: [1]
Mingle Forum by cartpauj
Version: 1.0.33 ; Page loaded in: 0.073 seconds.

Upcoming Events