Young@Park Victoria

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Author Topic: What is it that you want?
sharon
Administrator
Posts: 26
Post What is it that you want?
on: October 24, 2011, 07:36

About a month ago I went to a YAP meeting in melbourne. At that meeting, there was a great discussion about advocacy and planning for future needs. The question was posed - as a group, what is it that you want? what do you need - tomorrow and in 5, 10, 20 years time.

Since that time, the website has fallen silent. Everyday I stop by, and see what is on the minds of PWP.

What is it that you want?

carol wood
Newbie
Posts: 14
Post Re: What is it that you want?
on: October 24, 2011, 20:09

I could write here that I want someone to make me better,not having a good time at the moment,will enter a new post on that subject. Lets see I want a day with no pain,a day where when I go out I dont start to rock & roll,PD has changed so many things in my life but with the support of this group & local support group I know that I'm not alone.I sometimes ask myself how some of the younger PWP manage to look after kids, continue to work as I am lucky enough to have raised my family & if I dont want to do anything I dont have too. As a group the most important thing is that we continue to support each other because try as they might my husband ,family & friends can only observe what we allow them to see not what we feel.
sharon
Administrator
Posts: 26
Post Re: What is it that you want?
on: October 25, 2011, 23:46

Thanks Carol,
I have been blessed with good days and bad days at the moment too. it's very frustrating, and exhausting. There's 2 months until Christmas, and all the "I would like to do that by Christmas" plans I make are running behind already. I was quite distressed when the site fell silent, as I haven't felt this this stiff and sore before, and it has been quite isolating. You know, I don't want for much. I want to stay healthy long enough to see a cure.

Ian Scott
Newbie
Posts: 6
Post Re: What is it that you want?
on: November 1, 2011, 21:02

I have so many thought just have no idea where to start or how to put it to words so it makes sence

Ian Scott
Newbie
Posts: 6
Post Re: What is it that you want?
on: November 1, 2011, 21:02

I have so many thought just have no idea where to start or how to put it to words so it makes sence

sharon
Administrator
Posts: 26
Post Re: What is it that you want?
on: November 4, 2011, 23:36

Ian,
Just try one at a time.Theres no right or wrong, but it may help someone else as well as you.

Ian Scott
Newbie
Posts: 6
Post Re: What is it that you want?
on: November 6, 2011, 22:01

i would like to see a better understanding of parkinson in the work place im sure 99% of people think i just have a shakey hand they cannot see the other problemms
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